Sunday, September 28, 2008

A VISIT TO DYE FOR

A few months ago I invited my sister to spend Thanksgiving with us. Now I'm scared to death that she might accept our offer. Recently I received an e-mail with the subject line: RE VISIT. I gasped when I opened up the attachment. It was two pages long and full of very strong language.

Phrases like poisonous phthalates, toxic chemicals, hazardous to humans, fish-killing perfume-poison, pesticide residues, harmful fumes, and neurological poison were strewn throughout the document. Yes, I said document. This isn't your typical RSVP. But then again, my sister isn't your typical house guest.

Guess Who's Coming to Dinner? I'm a little nervous about my sister's upcoming Thanksgiving visit. (photo taken 1999)

Rebecca suffers from Multiple Chemical Sensitivities, or MCS. She has become increasingly handicapped with this condition. She struggles daily to keep herself in an environment devoid of common man-made products or, in her words, "poisons."

According to my sister, even unscented products are subject to scrutiny. She claims that St. Ives fragrance-free lotion probably contains a scent-blocker, or a perfume ingredient to drown out scents. Her explanation: "kind of like putting a blindfold on someone so they won't see how messy the room is."

Rebecca is going through some tough times. Not only is she single, homeless, and without the ability to provide for herself, but she has virtually no contact with her daughter or son. A resident of Alaska, she has balked at traveling to the "lower forty-eight" in recent years, believing that chemicals used in airplanes will seriously compromise her already weakened immune system. I've been encouraging her to try and step out of her comfort zone and take another look at some life options. Our eighty-year- old mother is recently widowed and lonely in her beachfront condo. She must pay someone for basic household services. This is a situation where mother and daughter could benefit by living together or near to each other. My brother and I have both offered to build small guest homes on our respective properties, and essentially take care of our sister for the rest of her life. But she is adamant that only Alaska provides the combination of clean air and sparse population critical to her survival.


Rebecca claims dryer sheets or fabric softeners irritate lungs, eyes, and skin. They use a petroleum-based oil to soften clothes. Breathing the fumes is called huffing. Everyone should switch to dryer balls. The best news is, they are cheap and last at least two years.

When I invited my sister for Thanksgiving, I was hoping that she could benefit not only from our mild Arizona temperatures, but also from the warmth of our extended family gathering. I didn't want her to spend another holiday alone. Initially she sent me a few tentative e-mails: What are the average high and low temperatures in your community in November? Is there room in your home? Would I extend an invitation to our mother? These were easy questions to answer. I'm just not sure how to deal with her latest communication. Rebecca's e-mail was an explicit list, detailing acceptable products that she can "use and that those with MCS can usually be around." Of course, she couldn't resist a healthy dose of unsolicited advice and name-dropping:

I know Mensa members who refuse to have [bleach] in their homes, as it's so very dangerous in the event of an earthquake or fire.

Dr. DeMain says Tide---even Tide Free--- has formaldehyde, which is an eye, lung, skin irritant, also a poison.

To keep drains free of clogs, put a little Rid-X, powder version only, down each drain about once a week just before bedtime.

A packet of black Rit dye is $2 or less, and good for an entire big wash load of clothing that has faded. The Soap and Detergent Assn. says it's best to just turn your darks inside out to keep colors bright by reducing abrasion and pilling.

Rebecca calls Black Woolite a "vicious product...loaded with fish-killing chemical perfume-poison."

While I discovered some interesting household tips in her letter, learning that I can renew faded jeans with black dye does nothing to prepare me for my sister being a house guest. I know this visit is going to require more than just leaving the light on and hiding a key under the mat.

The owners of Rebecca's last apartment went all-out to accommodate her MCS. The walls were repainted without the use of Volatile Organic Compounds (VOC). Carpet, flooring, tile and windows were all replaced. They even moved her upstairs to a corner unit so she could have the cross-breeze that she requested.

Several years ago she brought a law-suit against the owners of her apartment complex. She insisted that the residents stop using items such as dryer sheets and scented candles. She even demanded that the outside grounds and parking lots be off-limit to smokers. In a letter to the apartment manager, she complained that "at any particular time, one or more neighbors smoke in or near this building; there is no respite. Smoke travels throughout a building, emerging from electrical outlets or light fixtures, as well as hallways and under doors. Whether or not I smell it, my body registers it. I need your help. I am handicapped and need clean air in order to live, to avoid death or further disability. I ask for that accommodation---now."
I need to come up with my own practical accommodation for my sister this Thanksgiving. Knowing what I know about her, I'm worried that I don't have the ability to meet her stringent environmental criteria. And how much do I inconvenience the other house guests? I will have daughters, their husbands, my in-laws, and several babies visiting our house at the same time. I definitely need help thinking outside the VOC! (Sorry, I just could not resist that...)


copyright 2008 by Kathleen Stewart Goodrich

5 comments:

Unknown said...

Well as hard as it will be for Aunt Booka, I do hope she comes. Zach is really excited to meet her !

Cristin said...

Yes, Aunt Booka does liven up the party. It would be fun for her to come.

As for what to do... hmmm... how about you tell her that by tapping two sticks together around the house, it will ward off any chemicals that she may not smell, but her body registers. Just tap it in each room and in front of people wearing deodorant.

KC said...

Mom, I sure hope Booka isn't reading this! I think Cristin's idea is good, but yeah I am worried a bit because I do wear scented deodorant and wash my hair with scented shampoo.

Erik said...

Low VOC paint huh, must be really $hi#y paint, bet it chalks off in a year or two and won't bond to the substrate worth beans. She really wouldn't like to know some of the "ingredients' in my rocket motor, all kinds of goodies for her to freak out about, like solvenated synthetic rubber, thats a really pretty smelling one.

amber {and co.} said...

Since it's way past Thanksgiving now, I'd like to hear how the visit went!! Eventful I'm guessing?